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RADDAR-J: Rare Disease Data Registry of Japan

IDNBDC common database IDs, which should be written in parentheses if there are multiple titles, such as Japanese and English. NBDC02406
Database nameName of the database RADDAR-J
Alternative nameAlternative name of the database Rare Disease Data Registry of Japan
URLURL of the database https://www.raddarj.org/en/
Database maintenance siteSite maintaining the database RADDAR-J
Country/RegionCountry or region name where the database maintenance site is located Japan
Database descriptionDatabase descirption The RADDAR-J site was constructed for consolidating and supporting registry studies about intractable diseases covered by the Practical Research Project for Rare/Intractable Diseases of the Japan Agency for Medical Research and Development (AMED) and the Research Project on Rare/Intractable Disease of the Ministry of Health, Labour and Welfare (MHLW). It provides document templates required for the construction and operation of intractable disease registries. Users can browse the list of intractable disease registries or search with keywords, and data collected by RADDAR-J may be available for secondary use for research.
Organism(s) coveredNCBI Taxonomy names and IDs covered by the database Homo sapiens (9606)
Tag - TargetTag to indicate targets for this database such as genome and protein
Genome/Gene
cDNA/EST
Genetic variation
Epigenetics
DNA
RNA
Protein
Carbohydrate
Lipid
Metabolite
Chemical compound
Drug
Cell/Organelle
Organism
Health/Disease
Tag - Information typeTag to indicate information types for this database such as sequence and structure
Phenotype
Bioresource
Method
Ontology/Terminology/Nomenclature
Environment
Sequence
3D structure
Chemical structure
Expression
Localization
Geographic Distribution
Interaction/Pathway
Taxonomy
Classification
Image/Movie
Bibliography/Documents
Portal
Repository
Reference(s) - PubMed ID/DOIPubMed IDs/DOI for papers related to the database
Language(s)Languages in which the contents of the database are displayed Japanese, English
Operational statusOperational status for the database Active
Link(s) to Downloadable dataLinks to downloadable data
Link(s) to MetaData of downloadable dataLinks to metadata of downloadable data
Link(s) to Terms of useLinks to terms of use of downloadable data
Link(s) to "How to use"
Contact information of database
Link(s) to API / SPARQL endpoint
Link to LSDB ArchiveLink to LSDB Archive
Link to MEDALS Database listLink to MEDALS Database list
Link to TogoTVLink to TogoTV
Link to FAIRsharingLink to FAIRsharing
Similar databasesDatabases that are similar to this database.
Record maintainerRecord maintainer Integbio Database Catalog
Record sourceOrganization that originally created the record
Date of creation of this recordDate of creation of this English record 2019-02-12
Last update date of this recordLast update date of this English record 2019-02-12
Record license Creative Commons CC0 license